21st November 2017

Hi, my name is Trev.  I am 57 years young, and I spend a lot of time lurking around CRPS sites and blog pages searching for remedies, treatments, whether it be natural or pharmaceutical. This is the first time that I have written to anybody about it.

I have been diagnosed with CRPS by three specialists in this field. I hope you don’t mind me telling you a bit about my story with CRPS.

It all started when I snapped a tendon in my ankle. Doctors operated to repair the tendon, and all seemed to be healing well. After about 4 weeks post op the pain was starting to become unbearable so back to the doctors I went.  They unwrapped the bandages from my leg and ankle to find 7 of the 15 stitches had burst open due to swelling from an infection. That was 4 and a half years ago.

Anyway to cut a long story reasonably short, I have been through 8 operations, with the last being 10 months ago, to have a spinal cord stimulator implanted inside me. I have lost count of all the drugs that have been prescribed, from opioids & anti-convulsants, the list goes on, to try and make me relatively pain free.

The pain never stops. I’m unable to work because of this disease. I do have very good medical support to help me, i.e. doctors, physio, therapist for depression and anxiety.  I have in the past requested (begged) on two separate occasions to amputate my leg, that didn’t happen.

I’m still on a lot of medication for the pain, it helps. The spinal cord stimulator reduces the flare ups in the leg, (major swelling and bad discoloration).  Anyway, I will leave it at that, I could write pages and pages on the ups and downs that I have gone through, but I won’t….

Regards
Trev.