NB: The information provided on this page is not intended to be a concise guideline for NDIS applications. It does not replace the information provided by the NDIS/NDIA and does not reflect their opinion in any way. It is purely provided to help people living with CRPS understand how CRPS impacts an application for the NDIS and offers advice on what may be helpful in an application.
To qualify for the NDIS your condition must be considered to be permanent and stable as well as a disability that significantly impacts on your ability to perform normal activities of daily living.
A condition is considered permanent if it has been:
fully diagnosed by a qualified medical practitioner,
fully stabilised; and
given all available evidence, is more likely than not to persist for longer than 2 years.
You must be considered SIGNIFICANTLY disabled.
The NDIS is only designed to support the most severely disabled members of our society. Nearly 5,000,000 Australians are disabled. Only 560,000 of those will qualify for the NDIS.
Other supports are available through State and local government areas.
You can test your eligibility here:
The impact of Complex Regional Pain Syndrome on your application.
CRPS itself is NOT a disability. CRPS can cause you to become disabled. You cannot qualify for the NDIS simply because you have CRPS.
The NDIA (the body which assesses applications) concentrate on disabilities (or impairments) when you apply.
Pain is not taken into consideration. Pain is not an impairment in the context of an application to the NDIA. Pain is a symptom of our neurological condition – it is not a disability. Allodynia as a dysfunction of the skin is an impairment however. Allodynia can case a ‘mild, moderate or severe dysfunction of the skin.’ Allodynia can cause you not to be able to touch or pick up objects, or not to be able to put a foot to the floor etc. i.e.
“[name] has a severe functional disability on activities requiring healthy, undamaged skin. They suffer with severe allodynia which impacts severely on their ability to perform activities with their hands and lower limbs. They are unable to wear clothing or footwear due to their severe degree of allodynia and they require a bed cradle and supports to ensure that their feet do not touch their bedding at nighttime and mobilisation with a wheelchair due to being unable to touch the floor with their feet.”
We suggest that you use the Social Security Impairment Tables to find other impairments that apply to you and use these tables to have your reports written. You can find the table here:
When applying for NDIS/NDIA the focus needs to be on the loss of function & independence. You need to fully set out the actual permanent disabilities that you have with a focus on your loss of function – not your diagnosis.
How are you disabled (impaired) and how does it affect you from day to day? You need to have reports based on how your disabilities affect you physically and demonstrate that those disabilities are permanent.
Tell them what you can’t do. For example:
If you have it in your lower limbs, how does that affect you. Can you walk more than a few steps, do you need crutches or a wheelchair to mobilise.
Can you take care of your own personal needs, do you need assistance to get out of bed or into a wheelchair? Do you need help in the shower/bathroom etc?
Can you do work around the house or do you need someone else to do it for you?
Are you able to vacuum & mop a floor without falling or having to stop several times or spending a day on bed from over doing it?
Can you shop on your own or do you need someone to help you?