MEDIA RESOURCES FOR CRPS AWARENESS MONTH – November 2018
CRPS Network Australia is a leading National charity that was formed to support Complex Regional Pain Syndrome (CRPS) research and to lessen the impact of CRPS by improving the treatment, care and experiences of Australians diagnosed with CRPS and those close to them.
CRPS is a severe debilitating neurological pain syndrome that affects as many as 1 in 3800. 18 new Australians will contract CRPS every day, although many of those will go undiagnosed due to a general lack of awareness of this disorder.
If diagnosis and treatment does not occur within 3 – 6 months of developing this condition, there is a high likelihood that it will go on to be a chronic progressive disease which is often associated with substantial disability, loss of quality of life and great personal and societal economic burden.
Rather than being diagnosed within months, patients often take years to get a diagnosis, by which time the chance of gaining remission has long since passed. If a patient is fortunate enough to have the condition spotted and recognised within the optimum time frame they often languish for up to 18 months on wait lists to see one of the few pain specialists available in public pain clinics. This is despite the International Association for the Study of Pain (IASP) recommended wait time of one week, which is as follows:
Most urgent (1 week): A painful severe condition with the risk of deterioration or chronicity, such as the acute phase of complex regional pain syndrome (CRPS).
Due to the extreme pain of CRPS, which for many rates above that of traumatic amputation, cancer pain or childbirth, many sufferers experience feelings of depression and anxiety and approximately half will experience suicidal ideation, with may carrying through or attempting suicide.
Colour the World Orange for CRPS Awareness Photographs
Brisbane City Hall
Photo courtesy John Krohn
Optus Stadium Perth
Photo Alysia Bishop
Victoria St Bridge, Toowoomba
Photo Helen Dodds
The Perth Bell Tower
Photo Lori Lockyer
Melbourne Citylink Sound Tube
Photo supplied by Transurban