CRPS AWARENESS MONTH – 2018
November is CRPS Awareness Month and a great time to GET LOUD about Complex Regional Pain Syndrome.
There are so many ways for you to get involved and create awareness in your own community, whether you are a student, working, not working or a retiree.
Here are just a few ways that you can that you can participate:
Colour the World Orange 2018
Help Celebrate the 5th Annual ‘Color the World Orange Day®’ on Monday 5th November 2018.
A day that allows everyone touched by CRPS to join together to spread global awareness of this poorly understood condition.
“LET’S SHOW THE WORLD THAT WHILE WE ARE IN PAIN, WE ARE STRONG.”
#CRPSORANGEDAY #CRPSnetworkaus #CTWOaus #GetLoudAboutCRP
30 landmarks around Australia have pledged their support to light up orange for Complex Regional Pain Syndrome Awareness.
Are you preparing to come out in support of this international campaign, meet other people with CRPS and photograph these amazing landmarks in many cities and towns that are lighting up? We would love your support.
If you know of landmarks/infrastucture that is capable of lighting up – please let us know – especially in areas outside of the major cities and in Sydney in particular.
Here is the list of Landmarks that are lighting up as at the 25th of October – thank you so much for your support of Australians living with CRPS.
Please let us know if you are planning to come along and if you would like to act as a coordinator in your area. We would ideally like 2 coordinators in each major city.
If you are planning to come to a Colour the World Orange event where you live, please let us know via the ‘contact’ link below:
Where you live
your contact ph number
would you like to be an area coordinator
Tell Your Story
We are always looking for CRPS stories for our online library, but in November we are also looking for stories that we can have published by various media outlets around the country. If you would like to volunteer to tell your story please use the contact button below to tell us a little bit about you.
When and how did you get your CRPS?
Did you have problems being diagnosed or with being treated?
Did you have a good experience?
What are your local newspapers?
Do you have a good quality photo that could be used for your story?
What phone number can you be contacted on and what is the best time to call you?
Pick a day for your sporting club, school or office to have a CPRS awareness day while raising much needed funds for CRPS education and prevention campaigns at the same time.
Wear orange socks, orange shoelaces, or an orange ribbon.
We don’t care what you wear as long as it is ORANGE!
Schools or sports clubs could make it a gold coin donation for participation or make it a little more fun by seeing which class or team can make the longest coin trail.
Ask all of your friends and family to wear something orange in November, post a photo to social media and to pledge a donation in your honour for CRPS awareness. Set up a ‘Colour the World Orange’ fundraising page using the link below to make donating easy and get automatic tax receipts.
Every donation over $2.00 is tax deductable, helps us to make a difference to Australians and their families living with CRPS and will help fund our advocacy, education, awareness and prevention programmes.
#CRPSORANGEDAY #CRPSnetworkaus #CTWOaus #GetLoudAboutCRPS
Go Orange for CRPS
Holding a fundraiser during CRPS awareness month is a great way to draw attention to Complex Regional Pain Syndrome and raise much needed funds to help us continue our education, prevention and awareness campaigns as well as support Australian CRPS research.
From Raffles & Tea Parties to Quiz Nights & Gala’s and everything in between. You are only limited by your imagination!
We have a large number of ideas for you to get you started.
CRPS AWARENESS MATTERS
Regardless of what you do plan to do the most important thing is to do it ‘out loud’. We want as many people as possible to become aware of Complex Regional Pain Syndrome.
Wear something Orange and post it online with the phrase “CRPS Awareness Matters”
Let readers know that Complex Regional Pain Syndrome is a disabling condition that could happen to anyone and use the full name of the disease.
Use appropriate hashtags #CRPSORANGEDAY #CRPSnetworkAus #CTWOaus #GetLoudAboutCRPS
Send us copies of your photos or tag us in your social media posts so that we can post them online as well
Wear CRPS Merchandise as often as possible
Ask local shops if you can put up CRPS posters
Use CRPS Facebook frames & cover photos
(We will have many resources for you to use and share before, during and after November, such as leaflets, posters, facebook frames and coverpage pictures etc)
#CRPSORANGEDAY #CRPSnetworkAus #CTWOaus #GetLoudAboutCRPS