What should Schools and Teachers Do?
Parents should be encouraged to get an Action Plan from their GP or Specialist outlining the child’s capabilities and what special considerations may be needed for their child to continue their education at school.
i.e. avoid crowds due to allodynia
have time out as needed due to pain flares or fatigue
take medications as required
space away from wind or cold is required during lunch
Schools should discuss this with the parents and put in place an Individual Support Plan for the student.
You should be aware that the student may miss time due to multi-disciplinary health care appointments as these are scheduled frequently for this disorder. The student may also miss school due to extreme pain or emotional distress.
Never touch the student without asking for permission. Even the lightest of touches can cause extreme physical pain. Students with CRPS are also sensitive to loud noises, so be aware that the intercom, large crowds, and assemblies may even cause pain for students with CRPS. They may also be sensitive to changes in the weather, rain and heat and cold.
You should encourage the student to stay as involved as possible in school and extracurricular activities, especially in areas that they enjoy or are passionate about.
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